Today,
on Day 15 of chronicling this new “adventure,” I'm going to spill
the beans. Until now I've mainly been relating the events beginning
on and since September 1st. I mentioned the real adventure
began on August 18th with my first experience with being
cared for by EMTs, riding in an ambulance being rushed to the
hospital and experiencing an ER as a patient for the first time. It's
been 28 days since the “Fireball” from the universe randomly
struck me.
Let
me begin by saying, my story is unique to me. However, every one of us
can go back through our personal histories and relate stories about
all kinds of fireballs each of us has experienced. This isn't my
first. However, it may be, to date, the most dramatic, with the
potential for being devastating in several ways. But, we've all had
them. They might be medical, as mine currently is. They could have
been physical, psychological, emotional, relational or financial. No
one is immune.
So,
I'm not setting myself up as being unique in this regard. I'm simply
relating my unique story so that others may relate to it. Perhaps,
and even better yet, hopefully, others will be uplifted, inspired and
encouraged as they travel through their own life experiences.
The
Back Story
There
is always a back story. The backstories lay the groundwork for the
present and future. I had planned to be on the highways and byways
traipsing around our beautiful country on my nomadic adventures by
mid-November of 2018. I was late and then even later leaving due to
having committed to working on an audio product project with my longest
term client (nearly 40 years) and a very good friend. We finally
completed recording the project just a week or so before the
Christmas holiday season. By then it was too late to leave to start
making my visits as I would have headed south.
I
re-planned my departure for immediately after the new year, 2019,
began. I had some last-minute work to do in preparing the van (My
McVansion) including having a second, huge, 156 pound, sealed, deep
cycle house battery installed. I didn't place the battery in the
van. Two, big, burly men at my battery supplier did that deed.
However, I did a lot of rewiring, installing new switching and MOVED
the first (original) battery to make room for the second battery.
This proved to be a major and negative miscalculation on my part. I
injured my back and ended up in excruciating pain and virtually
immobile. I wasn't able to leave until mid-February.
I
was still in pain, but it was tolerable by this time. I made a few
brief visits on my way south but really couldn't tolerate anymore.
So, I headed for Florida where a friend and his wife had found a
beautiful, secluded camping location on a hidden lake in northcentral
Florida. They were awaiting my arrival. I stayed (camped) there for
approximately a month. By that time I was feeling back on top of my
game.
Since
I was approximately four months behind in my originally planned
travel schedule by mid-March, I ended up cutting out many more visits
I had planned to make. But, I was on the road and feeling really
good. I did a spin through Florida then blasted through the Florida
panhandle, Alabama, Mississippi and Louisiana to make my next planned
stop for a visit in Houston, Texas. I bypassed my other planned stops
in Austin, New Braunfels, Padre Island National Seashore and made it
to Kerrville, Texas for a visit with one of the authors of my former
book publishing company and his charming and fun wife. From there, it
was up to Fort Worth to meet up with a former grad school friend I
hadn't seen in 51 years and then to Dallas for another visit with a
friend and business colleague.
The
trip was going smoothly and I was feeling great in all ways. My
McVansion had thrown me a few curves and continued with a few more
over the balance of the trek, but nothing that couldn't be managed
along the way. After all, like me, My McVansion is now an “antique.”
I made a few stops in New Mexico for a couple visits and then I was
headed for Yuma, Arizona.
Yuma
is near Los Algodones, Mexico where my dentist is located. I needed a
cleaning and I had some other dental work to be taken care of. After
the first session, she said I needed to come back in about three
weeks to have the final work taken care of. So, off I went to
Phoenix. I visited several friends and family in Phoenix, met some
new friends and then headed up to Payson, Arizona in the higher
country. I found myself a breathtaking location at about 7,600 feet
on the edge of a cliff overlooking a 2,000-foot canyon. I was there
for about a week and a half all by myself. Being by myself is
important later in this story. And, this wasn't the only time I was
by myself in very secluded areas during this trek.
I
went back, to Phoenix for a small gathering of other friends, went
back to Yuma, got my final dental procedure completed and then headed
to Lake Havasu City to visit a nomad friend who had recently been
released from rehab and was staying in an inexpensive hotel. I felt
Carl would enjoy some familiar company for a short time.
From
there, I was off to California where I visited my former wife and her
daughter from before we were married (now part of the family and my
friends). Then into Los Angeles to visit my son and spend a few days
with him and meeting a friend of his. And, then it was out to Clovis,
California to spend some time with my former mother-in-law, who had
assisted me in my business for about 20 years. Also, I was visiting
my former brother and sister-in-law and niece and nephew. Toward the
end of my month-long stay we had a family reunion with her sons and
families and another daughter and husband arriving from all over the
country. It was also the celebration of my mother-in-law's 93rd
birthday. I spent a little over a month in Clovis.
The
Homeward Trek
Now,
it's important to know that during this entire time, once my back had
healed up and I was back on top of my game, I felt great throughout
the entire cross-country trek. It wasn't until toward the end of my
Clovis visit that I began feeling just a little bit of brain fog
creeping in. Also, I was feeling a bit of dizziness that I attributed
to some “senior” vertigo. And, I was experiencing a bit of
wobbliness in my legs. This was unusual since I was a walker and
could walk miles. There was also an occasional challenge with
swallowing food. I attributed this to eating too fast, taking bites
that were too large and not chewing my food thoroughly. This was a
typical habit since I prepared and ate my meals by myself so much of
the time.
I
finally left for the east coast (right after the triple earthquake
struck in California about 150 miles from Clovis). I plotted a route
east that would take me over the Sierra Nevada Mountains, through
Nevada, Utah, Colorado, Kansas, Missouri, Tennessee, Kentucky and
finally into my eastern base state of West Virginia. I left later
than I had planned, so I put some extra stress on myself.
Additionally, it was extremely hot in many of the places I was
driving through. I had several stops planned on the way for visits
and I made virtually all the planned stops and one unplanned stop
where I stayed on another mountaintop in Colorado at about 7,400
feet. I met a delightful Australian couple there with their U.S. RV
(they have one in Australia, too). We became friends. We can never
have enough friends.
I
left Clovis, California about 12 noon on July 8th, about a
week later than my planned departure. I arrived back at my eastern
base camp in northeastern West Virginia at about 4 PM on July 22nd.
My 21 day travel time had diminished to 14 days. Other than the
things I mentioned that I started feeling toward the end of my visit
in Clovis, not much changed by the time I got back to West Virginia.
However, I definitely was tired and stressed by the heat I
experienced and pushing my daily travel a bit longer than I had
planned since I had shortened my overall travel back to the east by a
week.
I
had a month until the professional conference I run in August each
year was coming up. I had completed most of the intense part of the
planning and preparation for the Veteran Speakers Retreat while I was
traveling. The event was slated to begin on August 22nd. I
had plenty of time to relax, destress and be ready for the event.
But, that's not how it happened. I was still feeling some of the
issues that I began noticing while I was nearing the end of my time
in California.
I
called my primary doctor's office and set up an appointment for
Tuesday, August 13th. I told them I had some issues I
wanted to discuss about my health. That was a red flag for them. They
told me, when I called for the appointment, as soon as I said I had
issues they knew something was up because I never have issues. Well,
that is other than about eight years earlier when I was stricken by
Lyme Disease. I even mentioned that perhaps I was having some
recurrence. I was at my appointment. The visit lasted much longer
than my normal visits. They took blood to test for the possibility of
the Lyme Disease flaring up. They took other blood for other lab
work. All my labs came back fine. However, I was scheduled for a
Barium Swallow test. The one thing that really caught their attention
was my occasional swallowing issue.
The
Fireball
Five
days later, Sunday, August 18th was when the universe
randomly hurled a Fireball and it struck me. I was feeling fine that
morning. I got up, took care of my regular bathroom business. It was
normal. I went out and walked about a mile and a half. That appeared
fine. I was sitting at my table with my computer working on some
things for the upcoming conference when all of a sudden I began
feeling lightheaded and nauseous. I laid down on the bed. Then I got
up and went to the bathroom and now I was passing black blood. I was
sweating profusely and couldn't get up from the commode for quite a
while. I finally made it back to my bed, laid down and was still
feeling bad.
I
decided I had to get back to the bathroom. I got off the bed. The
next thing I remember was that I was being picked up off the floor by
Carolyn's grandson (a professional EMT who was visiting his
grandmother that weekend). Carolyn was over me, too. She's a retired
nurse with 50 years of experience. Thank God they were there.
A
few minutes later, the local EMTs arrived, stabilized me and got me
on a gurney and out to the ambulance and off we went with siren
blasting to the local ER. My blood pressure had dropped to 50/30.
According to my research, I should have been in a coma or dead right
about then. The black blood continued later into the day. My blood
pressure and vital signs were very slowly rising, but not even a
close third to any safe zone. The ER ordered a head CT and an
abdominal CT. Neither showed anything negative. They kept me
throughout the day and wanted to admit me. However, I had a
conference to run later that week with people coming from all over
the U.S. and Canada. So, against medical advice, I signed myself out.
Slowly,
ever so slowly, my blood pressure was rising toward, but not yet
close to normal. My heart rate was racing typically between 110 and
115 (my normal resting heart rate is in the mid-60s). I relaxed while
getting some work done on Monday and Tuesday. I took a test drive in
the van to see if I could drive without any issues. And, of course, I
still had no idea what had happened. It was, literally, a Fireball.
On
Wednesday, August 21st, I had a follow-up appointment with
my regular doctor's office. I drove myself there, approximately 70
miles over 7 mountains and through 7 valleys. I brought copies of
everything from the ER the previous Sunday. They canceled the Barium
Swallow test, told me I needed to have an endoscopy, but ordered me
to go get some blood drawn at the hospital diagnostic center in
Winchester, Virginia, where I was now located. I did as ordered. I
told the doctor's office I was heading to Front Royal, Virginia, the
site of the upcoming conference I was running, beginning the next
day. However, I was checking in a day early to get some final
preparation done and to meet with some advance members of my team.
I
went to Front Royal, I picked up some printing at my former business
partner's place and then checked into my suite at the hotel
overlooking the mountains and a golf course. About 3:30 the doctor's
office called me and ordered me to get to the ER at the Winchester
Medical Center IMMEDIATELY. I was about 25 minutes away. They weren't
at all thrilled with me driving myself. They had already contacted
the ER triage nurse to alert her of my pending arrival and giving
them the details. I had some things to complete and get with my
advance team and brief them I was not sure if I'd be back for the
beginning or any of the conference.
I
arrived at the ER somewhere between an hour and a half and two hours
later. And, of course, they were anxiously awaiting my arrival and
not at all happy that I didn't get there immediately. I had to find a
parking space and then walk back to the ER. The triage nurse
passed me by the other people waiting in the chairs, tagged me and
had me back in an ER cubicle within minutes. They took my vital
signs, put an IV in my arm and took blood. It was then that they let
me know that I had been internally bleeding and bled out half of my
blood supply. Once again, I was walking on the line between life and
death. I guess I shouldn't have driven my van over to the hospital.
But, what did I know? I'd never been hit by a Fireball before.
After
keeping me there for a while, the ER doctor came in and said they
could keep me as an outpatient, in a special ER Observation Status in
a private room in a special ER unit. About 8 PM I was in my own room
in the ER on Wednesday, August 21st. On Thursday afternoon
they did an endoscopy and Thursday evening they did a CT scan of my
stomach and esophagus region. Friday morning, the surgical oncologist
on-call paid me a visit and I finally learned what was going on. At
first look, it appeared that I had esophageal cancer that had grown
into my stomach. The preliminary speculation was that it would
require chemotherapy, radiation and that would be followed by
surgery.
My
vital signs had pretty much stabilized and I was finally granted some
food (I hadn't eaten anything but liquid for two days). I told the
surgical oncologist precisely what medical oncologist I wanted for my
chemotherapy. He said the doctor I requested owed him a favor, so
he'd call it in for me. There was nothing more they could do for me
at that time. I was stable. They were not going to transfuse me with
blood, even though I was unbelievably anemic, but for medical safety
reasons, they refrained from transfusions unless my blood level
dropped any lower. I had stopped bleeding internally.
I
was discharged from the ER Observation Unit at about 5:45 PM on
Friday. They took me out to my van and I drove myself back to the
conference hotel. I snuck in without anyone seeing me – until a
little while later. The conference attendees discovered I was back in
the hotel. I operated on adrenalin for the rest of the weekend. I
checked out on Monday, August 26th and drove myself back to
West Virginia. By Thursday, August 29th, the two oncology
doctors I needed to work with for chemo and radiation adjusted their
schedules to individually meet with me and confer over my case and
treatment protocol. Everything moved rapidly from that point forward.
Ultimately,
the diagnosis is Stage III Gastric Cancer that has encroached into my
esophagus. The recent PET Scan I had indicates, so far, the
cancer has not spread to any other parts of my body. I'm very
thankful for that since my medical oncologist believes this tumor
began approximately four to five years ago. I also mentioned earlier
that I would return to some comments I made about my camping
locations. I have to believe, that this is not my time to leave this
life. If this Fireball had hit me in any of the various places I've
camped in deserts, national forests, mountaintops or even in Walmart
parking lots, the likelihood of me surviving would probably have been
little to none. If Carolyn's grandson had not been here the day I
passed out on the floor, I also might not have survived.
So,
that's the entire story. If you read it all, you are an intrepid
reader of this blog. As I said when I started this article, this is
only my own unique Fireball experience and story. I know there are
others that are far more dramatic than mine – and possibly tragic.
I have a fairly long treatment program and road to recovery. So, I
won't be seeing a lot of my friends for quite a while. But, do keep
in touch on Facebook, by email, phone calls are certainly invited and
I don't mind texts or PMs. I plan to post articles on my blogs every day or, at least nearly, every day. This is my own journal of
this adventure. But, if you read and subscribe to the blog, you can
check in on my progress.
I
do expect there to be some tough times ahead undergoing both daily
radiation and weekly chemo treatments. But, if I couldn't handle
this, I wouldn't be here writing about it. I have a mission to
uplift, inspire and encourage you, anyone you know and anyone else
who may find these writings so they can proceed beyond their own
individually unique Fireballs.
Please
DO NOT send me any negative things about the news, politics, etc.
Please DO send me anything that is humorous, funny, uplifting,
inspiring, encouraging and positive. I plan to do EVERYTHING I can to
maintain the most positive attitude I can and to bring smiles and
laughs to everyone I come in contact with from other patients, to
doctors, nurses, techs, friends, family, people I meet on the street,
etc. Thanks for your friendship, your caring and sharing and your
prayers, positive vibes and support.
Here's
today's thought to ponder. To be alive, to be able to see, to
walk, to have houses, music, paintings–it's all a miracle.
- Arthur Rubinstein
Live
free and be happy. EH
2 comments:
Ed, be positive, stay positive, laugh at every opportunity, and keep on keeping on! That is what I try to do too.
Well thank goodness you aren't losing your hair! Ba-da-boom!
Brother if you need someone to talk to you know Brenda and I are here for you.
I hope to send you many more humorous and uplifting messages.
Tell Carolyn of she needs a set of ears call Brenda. (Mine have always had this annoying ringing in them. ;-)
Seriously, we will stand with you for spiritual support and encouragement. And, be watching the universe.
We love ya, brother.
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